Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Andrew, I was reading on this drug after you posted and as I understand TECENTRIQ is only avail. in Canada in a clinical trial setting, so Auz has to be on a clinical trial in Toronto. Trial enrollment criteria and testing details can be found here: ClinicalTrials.gov Identifier: NCT02458638 https:...

Auz never did Sutinib (sp?).
Different things work different for different people. Just keep trying untill something works.
Latest indicator might be microsatellite instability as a marker for immunotherapy.
I'm sorry i don't have more info.

MartinBube wrote:Wow Andrew I'm astonished of the result I see. This is amazing and very promising for a lot of us fighting this desease

Thanks Martin

Vega343 wrote:Andrew - incredible!
Would love to hear the latest and the details! How is your son doing? The scans you shared are similar to my daughters lungs at the moment and we are on Cediranib with "stable" results since March 2016 - his scans look like an amazing improvement!
MJ

Thanks Vega.

Andrew Thank you so much for info as I'm sure there are ALOT of folks out there needing this encouragement What dose is Auz on and is he doing anything diet wise as he weight looks to be great :P Hugs to the doc from me too We ALL our making great strides to combat Asps Dosing is available on line ...

Wow Andrew and Auz That's incrediable! Even the right side 13mm plus is gone. Was it the one treated by IMRT or was that the spinal primary ? I assume the first scan is Auz base scan ? I missed the post to what Auz is taking He had to go off cedirinib right ? He got on the trial ? Wonderfully great...

Hi All,
It's now 19 ish months and counting. Lung mets almost clear. Can't see the primary on CT scans any more. He's up 175Lbs of pure muscle.
A picture is worth a Billion. Here ya go...
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Hi Debbie, 150 Lung mets removed! That is very encouraging new for us. We don't know how many lung mets, YET! Yes, he should have been switched to Suntinib but our Doctor seemed to think this IMRT would be more beneficial even though it will exclude him from this trial. "It sounds like the prim...

Olga: Thank You.
Yes it is a clinical trial...
NCT01391962 https://clinicaltrials.gov/ct2/show/NCT ... 962&rank=1

He has been taken off the trial and when/if he has the radiation then he will not be allowed back on that trial.

So, Cediranib is not working. 4cycles of Cediranib and the marker points that they used for measuring showed a small growth, as in mm’s. Still awaiting the hard copy of those image results. This is the short version of the scans so you can get an idea of size / respectability. CT scan abdomen and pe...

Hi, this is Auston's Father writing. Auston's story: Auz has a twin bro “Dill”, an older bro “Kat”, and a mom “Moe”. We live in rural Ontario just outside Toronto, aka GTA. 2013 Summer, Auz developed a back pain and numbness in his leg. Of which he went to a chiropractor for relief and it worked to ...