Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi Olga, Chemo therapy lungs infusion is widely used in China. I'm not sure whether it is same with the therapy you mentioned done in Europe before. Hi Debbie, Thank you for sharing the articles :) Meng feels good now but during 4 times PD therapy, she suffered from serious sides effects. Yes, antib...

Sorry, I forgot to mention the dosage used in PD therapy.

PD-1: Keytruda
using reduced dose: 50mg each time and using once every 18 days

Cedirinib:
using 35mg everyday

Hello everyone, I’m Lisa from China. I have posted my own treatment history in the forum already and thanks for all your suggestions! Now I open this new topic to share the treatment of another Chinese patient who has been fighting with ASPS for more than 7 years. Recently, she had PD-1 therapy comb...

Hi everyone, Having been busy recently and It's been a long time from my last post. Just want to go back here to share the results of body examinations done last month. It has been more than 5 months since I stopped Pazopanib. I did lung CT scan, abdomen CT scan and brain MRI, and all of them are cl...

Hi Bonni and Martin, thanks for your remind of abdomen, pelvic and brain check. In last and half years, I did ultrasound examinations every three months . And I did abdomen CT once, pelvic MRI once and full body bone scan once. For the brain, I did MRI scan every three months. Are ultrasound examina...

Hey everyone, Having been busy recently. Sorry for late updating my recently check-up. After taking Pazopanib for 5 and half months, I had the second chest CT scan since the treatment at the end of February and luckily, as my best expectation, there is no nodule on my both lungs (at least, no visibl...

Three more images

Hello everyone, This is Lisa, another ASPS patient:) I’m here to help Lee to translate and post her doctor’s suggestion. It’s really a professional explanation, I’m not quite confident with my translation. If there is something unclear, please let me know. The doctor’s explanation about why my ASPS ...

Dear Olag and Bonni Hess, Thanks for your quick reply! Your words do give me some helpful deeper thoughts I did regular check of my primary, brain and abdomen every three months, everything is clear. As to the pelvic area mentioned by Bonni, I did a pelvic MRI about 4 months ago to check my iliac bo...

Hi everyone, My name is Lisa from China and I am 23 years old now. I am so glad to find this forum where so many friends exchange their experiences and opinions about this rare disease. I knew this forum from other Chinese patients and I really obtained lots of useful knowledge and information here....