Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello Olga I have a question about the lung surgery and was wondering first is dr rolle still performing these surgeries and if so what is the cost for such surgery? Is it covered by any health insurance? And do you have to go to Germany to have the surgery done or is this surgery now performed here...

I want to know if there's anything I'm doing wrong? Am I over looking anything? If the chemo I am in is a sure thing? Which one has a bigger success rate on pt's with ASPS! What questions should I be asking the oncologists.. I am still amazed about how I found ya'll I literally brag to everyone that...

The metts found in my head were not treated with gamma knife even tho it was the initial plan. The reason they did full brain radiation was because they found thru a deeper scan that gamma knife was not gonna target all the metts in my brain! As for the one near my heart is the biggest one in the lu...

Dear Olga, I was first diagnose in April of 2011 but I was first alerted in February of that year than after further test than I was giving my dx! I'm not sure exactly how many metts they found in my lungs but I was told it was a lot of them and one close to my heart! In November 2013 I was experien...

Thanks to all for your thoughts and support I am thrilled to be on this forum! When I was first dx I was thinking about something like this and finally I found y'all mi familia in this battle, that we are gonna send packing soon lol, but anywho I will be posting as much as I can and look forward to ...

I've taken this other drug called crozapanib or something of that nature but it didn't help! Before I had the tumor on my leg removed they gave me 25 radiation treatments to my leg so they can shrink the tumor before surgery but it never shrunk! They performed a full knee replacement and I now have ...

I am currently fighting this ugly disease and first I want y'all to know how I found out I had it. I was jogging in the yard when I felt a pinch on my right knee area. Right away I went to see a doctor to my right knee/thigh area which was swollen with a lump, I was than taken for a MRI and they rea...