Cure Alveolar Soft Part Sarcoma International (iCureASPS)

I was going to say, the word "lump" is now my least favourite, along with a whole bunch of others we use all the time on this forum....
However N.E.D. is my friend, as is N.A,D. (no abnormality detected)!

G'Day Bonni, Thanks for your post. Yes we're concerned about the radiation load, but we'd like to maintain six monthly scans for at least the first five years past DX. MRI tech is getting faster, so I hope soon that we can scan more of Annika with that in a short visit. The only area that really nee...

Arh good, that article says it's from contamination. So hopefully the rice areas here don't have that history. Should be OK, our rice areas are mainly new to cultivation when they first began irrigating. Before that they were sheep/cattle grazing areas or vacant land.

No, they just don't take the bran off. Good fibre and vitamins.
We eat doongara rice, similar to basmati, but grown here in Oz.

Oh great, no I didn't see that. Hopefully the brown rice we get is grown in a low arsenic area...

Oh, tell Josh to eat lots of different types of mushrooms, people who do have much lower rates of cancers. They don't know why, but hey, I'll take it!
shitake and maitake seem really good.

Yeah PET is clever, and sounds good, but it doesn't work well in slow-growing tumours. They are working on fluorescent compounds that stick to tumour cells, some that do that and then light up on fMRI would be awesome!

http://www.sciencedaily.com/releases/20 ... 121617.htm

The PNA stuff is interesting. I'm glad we don't eat them anymore....

The idea with the sugar is that you don't want higher blood sugar levels, tumour cells love sugar as fuel via glycolysis, so don't raise it! We don't eat peanut either as they can contain aflatoxin, a cancer promoter.... Diabetics have more cancers, esp if they are not controlling their levels. Conv...

Yeah it didn't really show it, you could sort of see it because you knew where it was, but it wasn't "lit up" at all. Kind of scary if you think about it, oncs want to use PET to look for tiny mets!

Hi everyone, Welcome new members and hello old friends. Annika and I went to Sydney Childrens Hospital at the end of January. She had a chest x-ray and an MRI on her arm and her head. These are all clear! :D She was very good, she had to stay still in the MRI for nearly two hours. The x-ray was amus...

not sure what the machine was, the girls went for that. they didnt take blood. lots of people have had a sore throat, so it is prob that. we scared the local medical people into unaccustomed speed! :ha ha ha: The fundraising is good for me too, gives me a goal that I can directly target. this yeas I...

Hello everyone, Just a quick update, Annika scared the life out of us this week finding a lump (I hate that word!) on her jaw. We contacted her oncologist and saw our local doctors and she had an ultrasound to both sides of her face. The swelling is a lymph node and is not suspicious, other nodes ar...

Annika is doing well, there are only 4 weeks of school to go until the summer holidays! I have just joined the "Racing for life" team at the Kids Cancer Centre attached to SCH. http://www.racingforlife.org.au On the weekend I raised $3000 for the Starlight children's Foundation with my Tou...

Hello all, We spent the weekend at Sydney Children's Hospital for a cancer parent's seminar, some interesting research being done at the kids cancer centre: CBL0137 and mini cell therapy. I also found this, interesting as ASPS expresses MEK: http://www.eurekalert.org/pub_releases/2014-11/uocd-nmd111...