Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Yes it is interesting, I do wonder if it works in ASPS.... So resistant!

Also: http://healthnews.uc.edu/news/?/26962/ Metformin is safe and well understood, it also keeps cropping up in energy research as being potentially useful in cancer treatment. https://www.researchgate.net/publication/274368575_Metformin_targets_the_GTPase_Rac1_to_inhibit_prostate_cancer_cell_migra...

This is very interesting and possibly drugable.

https://www.mcgill.ca/channels/news/new ... cer-256202

Hi Debbie, I find the immunotherapy research the most exciting, the more ways they find to "mark" or unmask cancer cells for the immune system to destroy is the best way forward ultimately. As a bonus there may be ongoing immune activity preventing relapse. Hopefully more ASPS people will ...

I think ASPS likes glocose and lactate (which to my understanding comes from carbohydrate breakdown) and is happy to use glutamine as a building block and for fuel. They have some early work on PEPCK being a way for tumours to use glutamine as fuel. I'd love to know if ASPS uses GTP as well as ATP. ...

Hey Debbie, Yes every six months for the MRI, he'd like yearly for the chest CT starting now. They haven't done bone scans as they believe that lung mets would happen first. They don't take blood as they don't know of clear markers for ASPS. We are all starting to calm down now, before scans is alwa...

Hi everyone, Happy new year! We have just come back from Sydney and Annika's MRI and CT scans are clear! Yay! We were a bit nervous as they did a CT of her neck after we found a lump, it has since shrunk away and looks to be a normal gland from a sore throat at the time. We will return for the next ...

Dear Mary Jo, I just wanted to say hello and extend my support toward you, your daughter and your family. My daughter Annika was dx in 2013 when she was 7 years old (you can read her story in Personal Updates). She turned 10 this year and your story resonates very strongly with me. Her diagnosis cam...

I was deeply saddened to read of Amanda's passing, we will miss her sunny input on the forums.
I will pray for her family.

Damian

Interesting about the lactate, I wonder if there is a way to limit lactate levels? Diet?
If lactate is often a waste product, is it possible to target it without harming other cells.
I'll be on google scholar.....

Found this article about sugar intake.

http://journals.plos.org/plosone/articl ... ne.0099816

Thanks Bonni, I don't believe that any diet can "cure" cancer. Being healthy and fit should help in a general way. Annika hasn't had milk since preschool, she tended to get a runny nose with it, she drinks almond milk now. She does have yogurt and goat's fetta. Do you have a link for the i...

G'Day Amanda,
We're sending love and encouragement from our family to yours.

Damian

Guys, I am glad to hear that Annika is found to be NED. The scanning is usually more intense in the first two years and then a diff. regiment for the next 5 years and then less intense one goes - like once a year. Re. diet - we are trying to be an evidence based board and although i general I suppo...

This is probably years out, but still cool.

http://www.infectioncontroltoday.com/ne ... eases.aspx