Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Olga - Yvonne and Dr. Kummar said you need to be off Cediranib for 3 days usually, but they wanted me off for 7 days when I was having surgery in an area like the lungs. And even though I was coming off the Cediranib, they literally only wanted me off for 7 days and not any longer. Hope that helps.

Ivan - you are correct. I am currently NED and no longer will be on Cediranib. My next scans will sometime this month.

Olga - yes this was my second surgery on this lung, making the scar tissue a little more challenging. My surgeons name is Dr. Ross Bremner.He is the chief of Thoracic surgery at St. Joseph's Hospital in Phoenix. I think I am his first ASPS patient but he has a strong interest in thoracic oncology an...

Hi Everybody! Sorry for such a delay in updating the forum. Last time I updated, I was having a positive response on Cediranib but wanting to get a surgeons opinion on tumor removal. Since that time I am currently off Cediranib and had a successful thoracotomy for my ASPS tumor that was adhered to m...

Hello Everybody, Sorry for the late update, I have been at work since getting home from the NIH. I had a PET and CT scan showing 37% shrinkage of my tumor! Good news! But I guess this seems to be the "norm" after a couple cycles of Cediranib. I spoke with Yvonne and Dr. Kummar about where ...

Eric, It was great meeting you. You were the first ASPS patient I have ever met and it made me very excited! I was there on Monday so if you were there Tuesday maybe that is why I didn't see you but hopefully next time. I'm doing good, hope all is well with you too! Ivan, Even though I am fortunate ...

Hello Everybody. My name is Jessie and I am new to the ASPS forums. I posted my story on the personal forums if you are interested! I started the Phase 2 Clinical trial on the NCI in MD in late October. I currently just have one ASPS tumor in my chest and it was decided that surgery was not ideal. T...

Hi Everybody! My name is Jessie and I am new to the ASPS forums! I am not new to ASPS though. I have seen these forums for awhile now, but for some reason never had the urge to post my story but I think its finally that time! So in 2002, when I was 17 years old (that makes me 25 now so you can stop ...