Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hi 'F'
Where can i buy this Essiac tea? Can only find the canadian, but it must be optainable in EU too.

I get my vitamin D too... In denmark they have also startet adding vitamin d to milk.

Damn im a real cheese fan, but could give it a try avoiding milk products.

Good one ivan.
Sadly i cant run yet, still have some pain. But trying to get on the excercise bike every day for 30 mins.

This is intereseting I have actually just asked my onc this question, and am looking forward to hearing the answer. Im taking some vitamins, herbs (in the form of pills) and ginger/avocado extract, also in the form of a pill. The logical asnwer would be, that this strenghtens the body to fight this ...

Hi ivan
yes as soon as i get that MRI ill make sure to send a disc to Vogl for his opinion.

We might have trials here in denmark too, but since the system works a little different, its not as open as in the US.

Two cycles of chemo takes 6 weeks.

Hi Guys Have some news after a phone call to my onk. Liver: An MR is being ordered, but first my onk wants to make sure this will show us for sure. He isnt keen on an tissue sample due to bleeding and such. They actually have the same robot devise as Dr Vogl to do reginal chemo and RFA to the liver,...

Lungs My fear is, that since my onkologist has only send 3 people to see rolle so far, and i know by fact, that they se new mets with all of us after only a few months, they may lack the experience in reading the scans correctly. I will aquire the scans and have them send them to Rolle to get his vi...

Hi Olga Lung mets: They are on both sides, and are all in the lower mm range. But again i didnt get presice messurements. But i dont have any count on it. Liver/Chemo: Its like they se it all as a whole. They seem sure the lungs are mets and sure the bones ones are too. Therefore the liver wont chan...

Hi all Chemo They are gonna give me ifosfomide. And if that doenst help, they have some other treatments. At the time, i didnt have the room in my head so dont remember it. Gonna find out. Scans These new findings are based on CT scans. The new scan with the findings, was done without contrast. The ...

bad news Since my last visit to Rolle i have some new nods in both lungs, plus the spot on my liver, the one they didnt think was cancer, has grown. They are still not sure if its cancer. Sadly they also see som changes to my bones in the lower back and to my "pubic". Thats what google tra...

Hi Guys Im doing well... Since the surgerys i have had some back problems, but a pysio helped with that, and its gone now... Then i got a fiber in my inner thigh when i was testing my lungs doing a 1km run... So bit of bad luck, but its getting better now :) Lungs fel great for normal actibity , the...

Having some first hand experience with Dr Rolle and his awsome surgery, id say that 3mm is perfect, but im not sure if only 1 met is enough reason to go in. But then again, scans can only pick up nodules the sice of 2mm plus. In my case i had 20 on CT in one lung and 30 in the other... atleast somet...

HI aprildee, and wellcome to this forum... This is the best place for info of this desease, we have som people here with alot of knowledge. Your story seems long, and im amazed it took them that long to diagnose it, but again, its a rare desease, and it isnt the first time i hear of this. I havnt be...

Never given wow a try... for same reason. One game like that, takes up enough time hehe :) It helped to take my mind off cancer playing the game and also being able to fly and things like that when I was in so druged after the last surgery... Also the friends in game didnt know what was going on an...

I have almost no scar tissue on the first operated site, and didnt do anything. But i was told by one of the docs in coswig, that i have a condition (not bad in any way) that makes me grow rather large scars, so cant do much about it really. Again its not anything to worry about, it just meens im n...

I am quite convinced that as soon as the incision is healed you should massage the scar and the operated area HARD. I believe the earlier you start, less scar tissue you will have. I have almost no scar tissue on the first operated site, and didnt do anything. But i was told by one of the docs in c...