Cure Alveolar Soft Part Sarcoma International (iCureASPS)

Hello everyone, Our daughter was diagnosed with ASPS in the summer of 2003, almost 10 years ago. Between 2003 to 2007, she went through 3 surgeries to remove the primary tumor and all large tumors above 3mm in both her lungs. Since 2007 there are no growing tumors in her body. Recently in a lung CT ...

Thank you Amanda and Arch. There are three reports in the literature about the use of interferon. One of them is in the library section of iCureASPS website: http://cureasps.org/library/7_ASPS_IFN_03.pdf . We have no way to know if interferon has any effect on ASPS. This is only my speculation. Inte...

Dear All, It is now 7.5 years since my daughter was diagnosed having ASPS. She had just done her annual scans. I am very glad to report that we continue to see stabilization in her lung mets. This stabilization is seen now for 4 years. Our daughter was diagnosed with ASPS in the summer of 2003. She ...

It is already almost one year since I updated you on the condition of our daughter. I am very glad to report that there is no change in the size of her lung mets. This stabilization is seen now for almost three year. Our daughter was diagnosed with ASPS in the summer of 2003. She used interferon alp...

Dear All, Long time since I updated on the condition of our daughter. She was diagnosed with ASPS in the summer of 2003. She used interferon alpha 2b for a year and had two surgeries during that time to remove her primary tumor, which was located on her shoulder and one surgery to remove metastatic ...

Thank you Olga, I read the relevant pages in the "National Comprehensive Cancer Network" (NCCN) Guidlines in Oncology for soft tissue sarcoma. It is very encouraging to see that some of the Treatment options that benefit ASPS patients are finally in this list: Thoracotomy and Video-assiste...

Hi Olga, The multiple lung mets were discovered at the same time when the primary was discovered. During our search for treatment options we asked the opinion of different specialists from different cancer centers. The majority of specialists recommended excising the primary out. One center recommen...

Hello everyone Three and half years have passed since our daughter was diagnosed with ASPS. Her primary tumor was removed from the shoulder three months later. Then, two years ago, 15 tumors larger then 3 mm were removed from one of her lungs. Now we decided to clear also the other lung. In a lung s...