Cure Alveolar Soft Part Sarcoma International (iCureASPS)

We just receive the last time CT scan report, everything is fine, but the lung mets growing to (2.0cm --> 2.2cm)

PD-1 is not started yet. Maybe this month middle.

Lynette，
How about George now? I am chinese too.

glad to hear, seems your disease was gone.
Did u take a pet-ct scan for all your body?

Hello All I just learned from chinese group, IL-2 sometimes they can help the cancer cell to growing, like double-edged sword, but the theory is complicated. The most important of using drugs is to taking the one which have data statistic, lower the risk and improve return. Immunosuppresive meds su...

Hello All Welcome I’m sure sorry to hear of your brother’s diagnosis but really glad to hear of the surgery of the primary . As Jussi has stated ,it’s one of the most effective treatments to date. What was the Chinese treatment ? IL-2 is certainly a powerful Med however there are some suggestions t...

Welcome. Unfortunately I share Olga`s opinion about traditional chinese medicine. These days asps can be effectively treated with surgeries, ablations and stereotactic radiation. Not to mention that asps is indeed the best responding sarcoma to immunotherapies. Immunotherapies are mostly used as la...

Welcome to our board. Thank you for posting the story of your brother Kai. From what you posted, I do not see any evidence the Chinese traditional medicine drug was working at all - it is a very frequent situation when the lung mets grow faster after the surgery to remove the primary tumor - the gr...

Patients from china can left a webchat, I will add you to my contact list soon.

Dear ASPS Community Friends: First of all, sorry guys for My english. I am Kai's brother from china. Kai was diagnosed with ASPS in 2017, It's especially difficult for my family but I am very happy to find here, Thanks Olga create this forum, I post here for record medical history and exchange exper...